By
Stanley I. Greenspan, M.D.
Teachers and parents
are frequently presented with bewildering diagnostic terms as well as
more disturbingly familiar ones, such as mental retardation or
emotional disorder. Often left to figure out the implications of
these labels, adults must act on their impressions about whether a child
with a particular diagnosis can be helped and, if so, how.
Looking
Closely at Labels
Traditional diagnostic
labels have served several important purposes: They have helped professionals
keep track of the types of problems children are having and helped researchers
study the causes of and some treatments for those problems. But diagnostic
labels also have significant limitations. First, in trying to group different
individuals together under a large category of what they appear to have
in common, we risk grouping together children who are actually quite different
from one another. A clear example is the attention deficit hyperactivity
disorder (ADHD) label. The ADHD diagnosis focuses on the similarity among
children who are inattentive, perhaps also overly active, and maybe unable
to concentrate well enough to follow directions. By settling for the label
ADHD to explain the behavior of of such children, we underemphasize many
important differences among them. One child may be inattentive because
he can't plan or sequence his actions well. Another may have great trouble
processing incoming information. Yet another may be oversensitive to sound
and, when confused, becomes inattentive and disruptive. A given child
may be hampered by a little bit of all of the above while another suffers
from none of them but, instead, is restless and very anxious for psychological
reasons. You can see that these are quite different origins for seemingly
similar behavior. Each calls for a very different intervention. The danger
of using the labels is that the uniqueness of each particular child is
lost. Settling for the labels often becomes more confusing than helpful.
Building
Individual Profiles
How, then, may we
categorize children with special needs in a manner that allows us to do
research and have a better understanding of their common problems, while
at the same time arriving at effective individual treatment strategies?
True understanding and effective intervention demands that we focus on
the uniqueness of each child rather than group many under some broad category
of common behavior. There is undeniably a great deal of pressure, in the
wider culture and within the professions, to use the traditional ways
of categorizing children with diagnostic labels rather than the method
of so-called dimensional approaches, which we prefer. We choose to look
at certain dimensions of each child, such as the ability to communicate
or relate. In other words, ours is an approach that allows consideration
of the unique profile of each child, in terms of the way he or she processes
sensations, including sights, sounds, and touch; and the way he or she
plans and carries out actions.
Another problem
with traditional labeling is that it often omits a consideration of where
the child is developmentally. In contrast, our profile includes each child's
functional level of emotional, social, and intellectual development. Interaction
with family members is another important component of this individual
profile. Together, these several descriptive pieces enable a teacher and
parents to carry out an intervention plan designed specifically to meet
the individual child's needs. The approach helps us to understand the
processes underlying a child's challenges, and enables us to go straight
to the heart of each child's ability to think, feel, and interact in order
to improve whatever needs improvement.
Sometimes a teacher
tells us that she has a new child in her classroom who is autistic, and
she wants to know how to work with an autistic five-year-old. Or she spots
a child who she thinks "has ADHD" and asks how to help him. We explain
to her that we can be much more helpful if, instead of using a label,
she tells us that the first child seems indifferent to other children,
and engages in solo repetitive play rather than typical interactive dramatic
play, or that the second child finds it difficult to pay attention when
there's a lot of peripheral noise, or when the teacher gives a lot of
oral instructions or asks him to do a task that requires many steps. If
the teacher spells out a child's profile in such ways, we can more readily
guide her toward solutions. Of course, it's also important to try to understand
why these particular things are occurring with these particular children.
And, incidentally, the approach that seeks to understand a child's unique
qualities doesn't preclude using medication, if and when it's medically
appropriate for helping a particular child with the processing challenges
she faces.
In any case,
the more educators and parents can create a profile of the child's singular
qualities, the better we can design suitable intervention for her.
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Moving
Beyond Labels
For several reasons,
though, it is often difficult to give up the traditional labeling. One
is that having a ready label makes the child's behavior less mysterious
or scary. It's not some unknown, terrible disorder but, rather, a known
entity about which there are ongoing research, treatments, and, broadly
speaking, ready answers. The labels give us the sense that the problem
is manageable. And then, too, using a label implies that the disorder
itself is responsible for the child's behavior and, therefore, we don't
have to look at what's going on around him or her, in the school, in the
home, or between the parents and the child, because there is a medical
reason for it all. Of course, this oversimplifies the nature of the problem
and limits the opportunity to do things that could potentially be very
helpful.
Also, it is regrettable
that applying certain labels considered to be very serious even close
to hopeless disorders, such as autism or mental retardation, can lead
to giving up on a child. These labels should not evoke so gloomy an outlook.
If we look at the child in terms of his unique features, we might see
avenues that would readily lead to improvements. This warranted optimism
is evident in my frequent recommendation of doing "Floortime."
The term, Floortime
is simply shorthand for what I've been describing here a developmental,
individualized approach to both diagnosis and intervention. Floortime
helps adults build understanding of the child and design interventions
based on each child's particular manner of functioning the way
he processes information, sight, sounds, and touch, and the way he functions
developmentally and interacts with others. The real agenda of Floortime
is to encourage an understanding of each child's uniqueness with the goal
of encouraging his or her maximum growth.
For all children,
but especially children with special challenges, we recommend an active
program of interactions at school and at home. The design is always based
on each child's individual qualities and developmental level. We find
it far more effective than the assignment of ready labels.
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Stanley I. Greenspan, M.D., the author
of The Child with Special Needs, is a clinical professior of psychiatry,
behavioral sciences, and pediatrics at the George Washington University
Medical School.
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