By
Stanley I. Greenspan, M.D.
A
five-year-old boy in my pre-K class has cerebral palsy. His right side
is weaker than his left, and his right arm is rigid. He has a brace for
his right leg, and he walks in a kind of bumpy way. He can't run, and
his speech is sometimes unclear. He has trouble drawing and writing. Since
he's getting physical, speech, and occupational therapy, these physical
handicaps don't worry me as much as his social limitations. He's a sweet
boy who sometimes looks a bit sad. How can I help him make friends and
feel he belongs?
I'm glad that your
first priority for this child is his social and emotional development.
Children with physical challenges often have difficulty with relationships
because of their physical limitations. In fact, moving through each stage
of development, including social, emotional, and intellectual as well
as physical development, is much harder for them — but still do-able.
Let's look at some of the skills children must acquire as they grow and
see how learning them can present unique challenges for children with
physical limitations.
Skills
and Challenges
Infants need to learn
how to focus and attend to things apart from themselves. That involves
coordinating what a baby sees with what he hears; naturally, he wants
to look toward the voice of Mommy. But that might require turning his
head, which can be hard for a child with low muscle tone or a weakness
or rigidity on one side. So learning to focus and pay attention is the
first challenge.
Then, babies must
learn to engage another person. It's important not only to look and listen,
but to respond with great big smiles and enticing glances to woo parents
into a loving relationship. That can be even more difficult for a child
who can't turn, move easily, or reach up with her arms in efforts to get
a hug, or move her face into big smiles.
Next, babies must
learn to act purposefully. This involves exchanging emotional expressions
and interactions — taking toys that are offered and handing them back,
all while making gleeful sounds. But that is difficult too, if you can't
move your arms or grasp something offered to you.
Children must also
be able to perform a sequence of activities in order to problem-solve
— for example, taking Mommy by the hand, walking her to the toy area,
pointing to the toy you want, and climbing up on Mommy's lap to reach
it. Obviously, if you have severe motor problems, all those actions are
difficult.
Using ideas creatively
is another skill children must master. To do this, they have to be able
to engage in pretend play, which might include picking up the doll, talking
to it, and organizing a tea party. All of this involves complicated motor
behavior.
Finally, children
need to learn to connect ideas. Some of the ways children do this are
by talking with one another and by joining in games such as musical chairs
or ring around the rosy. Obviously, it's difficult to get involved in
such activities when you have speech and motor difficulties.
You can see that
motor skills play a big part in the overall development of children and
that the challenges for a child with motor delays go way beyond having
a hard time writing, running, and jumping.
Focus
on Abilities
Here is the good
news: Once we know what our goals for a child should be, we can draw on
his many capabilities to help him achieve those goals. The motor system
is not the only capability children have, and we can often take advantage
of even limited motor ability. Let's take a child like the one in your
class, who has weaknesses on one side of his body but has control over
some muscles. He has one arm that's working well, so he can reach for
things and show you what he wants. Even without a good, functioning arm,
the child can convey ideas verbally or with signals. So he can learn to
be purposeful. It's vital to use all of the child's operating senses and
abilities, including language skills and the ability to see, smell, hear,
and move certain body parts. Like many others in his situation, this little
boy apparently does not feel that he can make things happen. That could
lead him to regress or to escape into his own private world when the going
gets rough.
A different child
in his situation might have temper tantrums. But if you can work around
the limitations of his muscles and create situations that allow him to
explore his own assertiveness, you will be helping him enormously. You
might pair him up with another carefully chosen child, and find activities
in which the boy with motor problems can be an assertive play partner.
Although his speech is not always clear, he does have verbal skills.
Now, suppose you
suspect that he is gifted musically. Draw on that. You know he can't dance,
but he can use one arm very well. So he can hold a baton and lead other
children who are playing different instruments. He is assertive and making
things happen. You, the teacher, have engineered it, evened the playing
field. The key is to create social games where this child does not have
to be just a passive follower.
Encourage
Involvement
Another thing you
might do to encourage involvement is use a tape recorder for children
to "write" stories. The physically challenged child can get
pleasure from creating along with his peers. Outdoors, if this child can't
participate in a kickball game, you might encourage him to play with others
in the sandbox. Encourage the children there to create a drama with toys,
using their voices rather than their bodies. Here again you are helping
the physically challenged child practice the skills he does have. Remember
to always praise his efforts. The harder the task, the smaller the steps,
and the greater the external rewards should be.
Caution
in Careful Doses
Finally, a word about
being overly cautious: Teachers and parents should not be inhibited about
their expectations of a child with physical challenges. In fact, they
should capitalize on every opportunity that gives the child a sense of
accomplishment.
Teachers, parents,
and outside experts all have the same goal — to enable the child
to become a creative, assertive, warm, friendly and social young person.
Back
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Stanley I. Greenspan,
M.D., the author of The Child With Special Needs and, with
Nancy Breslau Lewis, Building Healthy Minds, is a clinical professor
of psychiatry, behavioral sciences, and pediatrics at the George Washington
University Medical School.
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